Topic outline

  • Workshop Topics

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    Please click on each section below to access the materials and resources.

  • What to Do Before You Come to DC

    Now that you've gotten your hotel reservations, your transportation is arranged, your call shifts are covered, and you have  a friend to water the plants, take a few minutes to take the pretest and prepare to tell us a one minute description of your research.  Then, get your bag packed with business casual clothes and comfy walking shoes and we'll see you in DC!

  • Introduction to LearnRD Portal

  • The Fall In-Person Meeting

    We are excited to have you join the Leadership team in Washington DC October 30-31. On Monday, October 30, we will begin at 10am at Children's National (111 Michigan Ave, NW, Washington DC). We are a shuttle ride away from the Red Line Metro.
    On Monday, we will be spending the afternoon at the US Capitol meeting with Health Care Advisors to senators and better understand the intricacies of politics, medicine, and rare disease. Then, you can either return to Children's or spend the evening on the Washington Mall with a quick trip to a Smithsonian.
    On Tuesday, we will be meeting 9-3 to work in our small groups to set the year goals and identify ways to succeed.

  • Fall Session: You Have More Time Than You Think

  • Rare Disease Scholar's Launch: Dr. Debra Regier

  • Biosketch 101: Robin Faria

    We KNOW the holidays are a complicated time for everyone. So, this holiday, take an hour to learn more about biosketches (in your own free time!), then join a "call" to discuss your issues with perfecting your biosketch.

  • NIH FUNDING AKA "Have Paula Find the RIGHT Grant for YOUR Project!"

    Join Paula as she discusses her ideas for YOUR grant writing.  Her fun, interactive approach to grants takes away the fear and gives you help for how to approach what can be an overwhelming process.  While she uses the NIH-based funding options as her basis, her writing tips and view has been helpful for ALL grant writers!

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  • Rare Disease Grants (K) Awards: Dr. Paula Gregory

  • Genomics and Genetics in Rare Disease Research (OPTIONAL MODULE)

    THIS IS AN OPTIONAL SESSION FOR PARTICIPANTS ALREADY SAVY WITH GENOMICS OR GENETIC EVALUATIONS.  

    Take a quick over view of what next generation sequencing is, how it can be used, its limitations, and its benefits to patients and families with rare disorders.

  • Biorepositories (OPTIONAL MODULE)

  • Industry Interactions (OPTIONAL MODULE)

  • Interacting with Industry: Dr. Chapman & Hemoshear

  • Statistics 101 (October 24)

    In the Fall Preview, take the chance to join a conversation on the role of statistics in designing rare disease research.

  • Rare Disease Statistical Methods: Dr. Gary Dallaghan

  • Rare to Common: Dr. Marshall Summar

  • Rare Disease Career Success: Dr. Mark Batshaw

    Join Dr. Batshaw as he discusses his tricks for success in Rare Disease!

  • The Undiagnosed Disease Network: Dr. Bill Gahl

  • An Undiagnosed Disease Program: The Utah Experience

  • Mid-Year Discussions

    This is YOUR chance to vent, rejoice, brainstorm, and in general contemplate where you are at with your research project!  Get you call spot ASAP!

  • Scholar's Choice Month: How Exactly DO I Get Promoted??

    Want to contemplate a promotion or at least know what to expect??  The assignment this month is to find out YOUR institutions (or your dream institution where you wan tot work) requirements for tenure and non-tenure tract promotion.  Actually understand YOUR tract. 

    Then, Dr. Mary Ottolini will join us to discuss Educational Portfolios for those that have never heard of one and need one for their promotion!  If you DO not need an educational portfolio, OK to skip this webinar and instead spend the 30 minutes optimizing your research section of your CV!

  • Faculty Development

  • Being a Better Mentor

  • Graduation Materials