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Children's National Rare Disease Institute Education Portal

by Deb Regier -

The Rare Disease Clinical Research Training Program is recruiting for the 2022-2023 academic year.  This year long course consists of both in-person and remote online sessions providing the tools and mentorship needed for a successful career in Rare Disease Clinical Research. 

·         Topics include: statistics in small populations, interactions with industry and pharmaceutical companies, grant writing success, working with patient and family groups, career design and planning, and publishing in rare diseases. 

·         The ideal applicant: clinical research assistants, fellows in their final year of training, postdoctoral fellows, early faculty with clinical research interests.

·         The applicant must show a 10% time commitment from their program chair or department chair for focused research time. 

·         Program Timing:

o   The program requires a two-day virtual session (October 23-24, 2022)

o   A two 2 day trip to the Washington DC area (tentatively planned for Spring 2023)

o   twice monthly web-based learning sessions

o   completion of a mentored research project with culmination in a presentation

·         Costs:

o   Cost for all web-based activities are covered by the recruiting program. 

o   The cost of travel to the DC area and registration for the RDCRN meeting is at the expense of the trainee’s sponsor. 

o   Scholarships to cover travel costs are available, but limited.

o   Applicants from underrepresented groups in medicine are encouraged to apply and will be given priority for funding to cover travel costs.

·         Application Process:

o   Rare Disease Scholars Application (https://redcap.link/RareDisease)

o   at least one letter of recommendation from a research mentor or division chair

o   Current CV.

o   The application needs to be completed in one session and is expected to take about 30 minutes to complete.

·         Rolling admissions will begin on 9/15/2022.  Applicants from underrepresented groups in medicine are encouraged to apply and will be given priority for funding to cover travel costs.

Please contact Course Director, Dr. Debra Regier (dregier@childrenational.org) or program coordinator, Tiffany Swaringer (tswaringer@childrensnational.org) for any questions about the program.