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Rare Disease Research Training Program/ Rare Disease Workshops 2016-2017
Undiagnosed Disease: The Utah Experience by Lorenzo Botto
Penelope by Lorenzo Botto
Penelope by Lorenzo Botto
Completion requirements
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Penelope by Lorenzo Botto
to open the resource.
◄ Basic Stats: Rare Disease Certificate Program Presentation September 2015
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Scholar's Pre-Test Due 9/15
Day 2 Registration (due 10/1)
Upload your Day 2 Registration form Here
Elevator Talk Rubric Due 10/15
All About Elevator Talks: 1 minute max!
New Elevator Talk Recording Exercise Fall 2016
Rare Disease Scholar's Launch Tutorial October 2 2017
Biostats Lecture
Stats PPT as a PDF
Presentation by NCATS Director, Dr. Christopher Austin
"Rare to Common" by Marshall Summar
The Future of Rare Disease Research by Chris Austin
WEBEX: GRANT TRAINING: HOW TO BUILD, UNDERSTAND AND MANAGE A GRANT BUDGET
Basic Stats: Rare Disease Certificate Program Presentation September 2015
UDN Website for you to peruse
Presentation by Dr. Bill Gahl
A Little Extra....from Bill Gahl
Dr. Botto's Introduction to a Undiagnosed Disease Launch
Grantsmanship 101 by Paula Gregory
Dr. Paula Gregory's Overview of K award best practices
Paula Gregory's Slides
Paul Gregory's Q&A session...all things grants!
Danielle Whicher: Opportunities for Rare Disease Research Funding at PCORI
RDCRN Biosketch by Robin Faria UCLA
Link To "Assess" Your Business
Dr. Ottolini's PowerPoint File
Time Diary
Covey matrix
Goal Setting Document
"Old Pro" Biosketch Group
"Done it But Want More Help" Group
"BioWhat??" Group (first draft group)
Biosketch Template
NIH link to examples
NIH FAQ's link Robin Mentioned
Biosketch 101 (link to webinar by Robin Faria)
Presentation by NCATS Director, Dr. Christopher Austin
Dr. Austin's Rare Disease Certificate Program Presentation September 2015
WEBEX: GRANT TRAINING: HOW TO BUILD, UNDERSTAND AND MANAGE A GRANT BUDGET
Rare disease Grant Management
Basic Stats: Rare Disease Certificate Program Presentation September 2015
PCORI
PCORI: Dr. Whicher's Rare Disease Certificate Program Presentation September 2015
NORD: Paul Melmeyer Presentation
FDA talk for Rare Disease Certificate Program Presentation September 2015
LearnRD.com opportunities presentation
Levaraging Families: Mrs. Monaco's Rare Disease Certificate Program Presentation September 2015
September 2015 Workshop Survey
Dr. Batshaw: Funding in Rare Disease
Dr Batshaw's Q&A Time
Link to Dr. Batshaw's Funding in Rare Disease Talk
Dr Marshall's Presentation: rare--> common
Summar's Discussion Session
Drug Trials, Industry, and Rare Disease: Enns' Presentation
Dr. Greg Enns' slides for reference
Drug Trials, Industry, and Rare Disease: Dr Klein View of Research
Biorepositories....
Elevator Talk Rubric
Transition Awards: Dr. Paula Gregory's Overview of K award best practices
Transition Awards: Paula Gregory's Slides
Transition Awards: Paul Gregory's Q&A session...all things grants!
UDN Website for you to peruse
Undiagnosed Disease Network: Presentation by Dr. Bill Gahl
Undiagnosed Disease Network: A Little Extra....from Bill Gahl
Dr. Botto's Introduction to a Undiagnosed Disease Launch
Biosketch 101 (link to webinar by Robin Faria)
NIH FAQ's link Robin Mentioned
NIH link to examples
Biosketch Template
Dr Klein View of Research
Paul Melmeyer Presentation
Deb Regier's Quick Guide to "does this change mean anything"
PDF of ACMG Standards and guidelines for the interpretation of sequence variants:
ACMG Incidental Finding Guidelines PDF
Next Gen Annimations
Next Gen Annimation
DR's Genomic Tools Overview
Genomics Overview with Deb
Scoring Rubrics
Poster Rubric
Elevator Talk Rubric
Biorepositories....
Industry and Acadmics: The Industry Perspective
Dr. Greg Enns' slides for reference
Industry and Academics: The Academic Perspective
Scoring Rubrics
Poster Rubric
Editing Your Profile
Scholar's Post-Test
End of Year Survey
End of Year Survey: course content evaluation and Plan for presentation
UDN Website for you to peruse ►