Section outline

  • November 3:  Join with the CCRRD biannual Rare Disease Clinical Research Conference in Washington, DC

    November 4:

    8 am:  Shuttle from hotel to Children's National

    8:30:   Welcome from Dr. Marshall Summar
    9am:   Strategic Goal Setting:  the role of a plan in YOUR success
    10 am: Table Sessions to build Workgroups

    10:30:  Welcome from Dr. Mark Batshaw

    11:00:  Lunch

    11:20:  shuttle to NIH for tour and sessions

    12-12:30:  NIH security

    12:30:  The Undiagnosed Disease Network:  How Dr. Bill Gahl created a life around Rare Diesease Reserach

    1:30:  NIH Clinical Center Tour

    2:30 NIH Campus Tour

    before 4pm:  depart for airport, etc.  NIH is located in Bethesda Maryland and is on the Red line of the Metro.  The Washington Reagan Airport is a 45-60 minute train ride from Bethesda via Metro.